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Adopt a resolution recognizing September 7, 2025, as World Duchenne Awareness Day in Solano County
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Published Notice Required? Yes ____ No _X _
Public Hearing Required? Yes ____ No _X _
DEPARTMENTAL RECOMMENDATION:
Supervisor Williams recommends that the Board of Supervisors adopt a resolution recognizing September 7, 2025, as World Duchenne Awareness Day in Solano County.
SUMMARY/ DISCUSSION:
World Duchenne Awareness Day, observed annually on September 7th, was initiated in 2014 by Elizabeth Vroom and Nicoletta Madia, both active members of the World Duchenne Organization. Their goal was to increase global awareness about Duchenne and Becker muscular dystrophy. The date of September 7th was chosen to correspond to the 79 exons of the dystrophin gene, which is mutated in Duchenne muscular dystrophy (DMD). The initiative has since grown into a global movement, with participation from various countries and organizations. The United Nations officially designated September 7 as World Duchenne Awareness Day in 2024, marking a significant milestone for the rare disease community.
The 2025 theme for World Duchenne Awareness Day is "Family: the heart of care." This theme highlights the crucial role of family members and the wider community in supporting individuals with Duchenne and Becker muscular dystrophy. It emphasizes the importance of love, resilience, and hope within families facing this condition.
FINANCIAL IMPACT:
The costs associated with preparing the agenda item are nominal and absorbed by the Board's FY2025/26 Working Budget. The costs associated with preparation and purchase of the resolution materials are included in the Board's FY2025/26 Working Budget.
ALTERNATIVES:
The Board could choose not to adopt this resolution but that would not be recommended as the suffering of young men from Duchenne muscular dystrophy (DMD), which is incurable and fatal, is important and recognizing World Duchenne Awareness Day raises ...
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